Background: Patients with Duchenne muscular dystrophy (DMD) may be at higher risk of a severe course of COVID-19. The aim of the study was to evaluate: (1) the incidence and course of COVID-19 infection in DMD patients; (2) the vaccination status of DMD patients; and (3) COVID-19 related anxiety among DMD families. Materials and Methods: The study was conducted during an online symposium for DMD patients and their families. All participants (DMD families; n = 150) were asked to fill in the online survey with questions about COVID-19 infection history, vaccination against SARS-CoV-2 and anxiety during pandemic. Results: 53 DMD patients filled in the survey. Five (9.43%) were COVID-19 positive with mild symptoms of respiratory infection and anosmia; 23 (42.6%) were vaccinated, but in almost 20% of DMD families, none of the family members was vaccinated. Respondents revealed anxiety related both to the vaccination procedure and to COVID-19 infection (complications after infection 93.6%, death 62.4% respondents). Changes in health care system organization also aroused concern among participants (85.3%). Conclusion: The course of the COVID-19 infection in DMD patients was mild. Not enough patients with DMD and their families are vaccinated. Education about the management of COVID-19 infections and the vaccination procedure for DMD patients is needed and expected.
【저자키워드】 COVID-19, Anxiety, COVID-19 pandemic, SARS-CoV-2 virus, rare diseases, Duchenne muscular dystrophy, vaccination against SARS-CoV-2, neuromuscular disease, vaccination against COVID-19, 【초록키워드】 SARS-CoV-2, vaccination, pandemic, Infection, education, respiratory infection, Health, COVID-19 infection, management, Patient, death, Mild, incidence, change, Care, Mild symptom, higher risk, participant, material, positive, DMD, respondent, Course, conducted, question, expected, All participant, asked, muscular, 【제목키워드】 SARS-CoV-2, survey, clinical,